Showing posts with label childhood cancer awareness. Show all posts
Showing posts with label childhood cancer awareness. Show all posts
Wednesday, September 2, 2009
Childhood cancer awareness month
September is Childhood Cancer Awareness month. The GOLD ribbon is the symbol for childhood cancer. Did you know that over 12,000 children are diagnosed each year. 4,500 die each year from cancer and over 40,000 each year are in treatment. Did you know that brian tumors are the number one cause of death from solid mass tumors in children, more then asthma, cystic fibrosis, and Aids combined. Here are some things you can do to help spread the word. Visit www.teamunite.net to find out many ways you can help in spreading the word. Maybe even purchase some Gold Gear in support of all the children past, present and future that are or have been and unfortunately will be fighting this monster called cancer. To learn more about Brian Tumors please visit www.icouldbeyourchild.org see the face and read the stories of the devastation these families go through in caring for a child with cancer. Also September 13th, Aimee's Army www.aimeesarmy.com will be hosting the annual Aimee Dickey walk for childhood cancer at Nay Aug Park, Scranton, PA 11-5. There will be many families to share their stories, several state and federal representives, music and so much more. PLEASE, I ask you all to help us parents save our future, remember it could be your child, grandchild, or even a close family friends child. HELP stop it now before that happens. Thank you and God Bless,Annette (angel aimee's mom) forever 12
Saturday, May 2, 2009
May is brain tumor awareness month
Did you know that May is Brain Tumor Awareness month, and Gray is the color signified for Brian Tumors. Did you know that Brain tumors are the #1 solid mass tumor cause of death among our children. Did you know that there are 120 different types of brain tumors in children.
DIPG is the deadliest, no cause and no cure. Although, some may not be as deadly they are still very severe and need attention, most can leave the child both physically and mentally disabled for the rest of their lives. How is that fair to them and the families that live this horror. Please, write to all your House, Senate, and every other politician out there and ask them all to support HR 653 and S 305 National Childhood Brian Tumor Prevention Network 2009, tell them they need to step up to the plate and start allocating money for the research and cure for all Pediatric Brian Tumors and Childhood Cancers. Write to the American Cancer Society and ask why only 3% of their revenue is split between all 12 types of Childhood Cancer. Wow, how can that be. I was told once that Children just don't get sick. Well how is 12,000+ children each year being diagnosed with some form of cancer, of that 35% or 4,200 will die. So, please tell me now that children just don't get sick. Did you know that none of the providers caring for our children shares information about new studies, treatments, and other options a family may have in the well being of that child. You need to let all the politicians know that every single medical facility and doctor out there needs to share that information with everyone. We need to make the insurance companies pay the claims on all possible treatments for the children, no matter if it's conventional, homeopathic, natural, if you have to travel from one state to another in order for the possibility to save your child. The insurance companies to chip in and help save our children. The pharmaceutical companies need to start doing research into cure for children, even though to them there is no money and again I am told children just don't get sick. So let's just keep poisoning our children, with the same Chemo drugs you give to the adults but in a watered downed form. How is that safe, to our kids when they all ready know what happens to adults when you put those toxins into them. DIPG's have been around for over 50 years when it was first tracked, and we are no closer to a cure today then we were 50 years ago. Please, consider wearing Gray or a gray ribbon all during the month of May and when people ask what it's for, tell them OUR FUTURE. We all need to ban together to make that happen. Thank you and God Bless.
DIPG is the deadliest, no cause and no cure. Although, some may not be as deadly they are still very severe and need attention, most can leave the child both physically and mentally disabled for the rest of their lives. How is that fair to them and the families that live this horror. Please, write to all your House, Senate, and every other politician out there and ask them all to support HR 653 and S 305 National Childhood Brian Tumor Prevention Network 2009, tell them they need to step up to the plate and start allocating money for the research and cure for all Pediatric Brian Tumors and Childhood Cancers. Write to the American Cancer Society and ask why only 3% of their revenue is split between all 12 types of Childhood Cancer. Wow, how can that be. I was told once that Children just don't get sick. Well how is 12,000+ children each year being diagnosed with some form of cancer, of that 35% or 4,200 will die. So, please tell me now that children just don't get sick. Did you know that none of the providers caring for our children shares information about new studies, treatments, and other options a family may have in the well being of that child. You need to let all the politicians know that every single medical facility and doctor out there needs to share that information with everyone. We need to make the insurance companies pay the claims on all possible treatments for the children, no matter if it's conventional, homeopathic, natural, if you have to travel from one state to another in order for the possibility to save your child. The insurance companies to chip in and help save our children. The pharmaceutical companies need to start doing research into cure for children, even though to them there is no money and again I am told children just don't get sick. So let's just keep poisoning our children, with the same Chemo drugs you give to the adults but in a watered downed form. How is that safe, to our kids when they all ready know what happens to adults when you put those toxins into them. DIPG's have been around for over 50 years when it was first tracked, and we are no closer to a cure today then we were 50 years ago. Please, consider wearing Gray or a gray ribbon all during the month of May and when people ask what it's for, tell them OUR FUTURE. We all need to ban together to make that happen. Thank you and God Bless.
Tuesday, February 24, 2009
New Course
As my last post may have offended people, please know that was not my intent. The whole purpose I started this blog was to bring awareness to DIPG's and all childhood cancer. And that through my experience I can offer, support to other families that I am sad to say have been thrown into this ugly world of childhood cancer. I did however go off track only because of an injustice that I felt was caused upon another parent. But, to me now that is water under the bridge. No child or parent should ever have to go through this and I mean ever. It was and always has been my daughter Aimee's dream to put a stop to this so her niece will never have to hear the words your child has cancer and their is NOTHING we can do. Aimee has always been a very caring child, caring more for others then for herself, she was also a very intelligent child far beyond her age. If anyone has had the chance to really know her or myself then you would know this.
Some of you may be aware that last June, and again in October Aimee and I had tried to join a local support group through the American Cancer Society. Only to discover that the support group was for children with Leukemia only. When I had called to ask when and where the meetings were I was told that Aimee and I could not attend, because we have no idea what those families are going through. They were correct because Aimee and I didn't know what it was like to have hope of a cure because unfortunately there is none for DIPG. Not yet anyway.. Aimee's DX of DIPG to me was nothing more then a death sentence. Again I am sorry if I have offend anyone with my words. These are my own personal feelings. This type of tumor has been around for over 30 years and they are no further ahead today with finding a cure then they were 30 years ago.
I have now and actually have since the beginning been focusing mainly on bringing awareness and much needed funding for research to this cause as well as all childhood cancer. To me if know one knows this is out there how will we ever get total support. I am working with lawyers to make Aimee's foundation a non-profit 501 (c)(3) status. This is gruelling work. I would now like to let everyone know what I have been up too, since some tell me that I need to chanel my work to the positive and not negative as in weeks past.
Since even before Aimee had pasted we were working to start a local support group for all families of childhood cancer to be involved. Which now I am working with and organization to do so. So as you can see I am working for the good of all the families. I have been invited to speak and tell Aimee's story at a meeting in March. This support group is for anyone who has suffered a loss of a child not just cancer. I have also contacted Aimee's end of life specialist at CHOP to let them know what I am doing and to see if they would mention me to patients families that live in my area. It is my hopes that these families will soon learn that they are not alone. I also hope that from my own and others past experiences we can support each other. My older two children have even offered to join in as adding a support group for siblings. Even though my children are much older then most brother and sisters going through this they both fully understand what it is like to watch your sister suffer and then pass from this dreaded disease.
I have also scheduled Aimee's walk for September 13th 2009. More on that later. So even though some may feel that I have been channelling my energy for the negative I have not. I have been sending many letters to Government officials to help in the cause of bringing awareness and funding. Which, I am happy to say I have many officials that are coming to support Aimee's dream in September. Even though I have said many times that this is not about Aimee or Aimee's foundation someone needs to host the event so that will be Aimee. I have also invited many families to come and tell their stories, which I am also happy to say there will be many. So as you can see even though Aimee's Army is hosting the event it is not nor will it be all about Aimee but about all the children, past present and future.
My recent anger, and past anger towards others has mainly been due to the fact that some have lost focus on the main reason these support groups have been started in the first place. And even though we all have different opinions as to what treatment is best, or what support is best they are still just opinions none should be greater then the other. I have never nor will I ever push Aimee's dream or her foundation on to others. If you want to be there and support her cause Thank You, if you don't then I feel that is your choice and who am I to try and force you to change. May God bless you all and let us work together being soldiers to win this fight with DIPG and all childhood cancer.
Annette
Some of you may be aware that last June, and again in October Aimee and I had tried to join a local support group through the American Cancer Society. Only to discover that the support group was for children with Leukemia only. When I had called to ask when and where the meetings were I was told that Aimee and I could not attend, because we have no idea what those families are going through. They were correct because Aimee and I didn't know what it was like to have hope of a cure because unfortunately there is none for DIPG. Not yet anyway.. Aimee's DX of DIPG to me was nothing more then a death sentence. Again I am sorry if I have offend anyone with my words. These are my own personal feelings. This type of tumor has been around for over 30 years and they are no further ahead today with finding a cure then they were 30 years ago.
I have now and actually have since the beginning been focusing mainly on bringing awareness and much needed funding for research to this cause as well as all childhood cancer. To me if know one knows this is out there how will we ever get total support. I am working with lawyers to make Aimee's foundation a non-profit 501 (c)(3) status. This is gruelling work. I would now like to let everyone know what I have been up too, since some tell me that I need to chanel my work to the positive and not negative as in weeks past.
Since even before Aimee had pasted we were working to start a local support group for all families of childhood cancer to be involved. Which now I am working with and organization to do so. So as you can see I am working for the good of all the families. I have been invited to speak and tell Aimee's story at a meeting in March. This support group is for anyone who has suffered a loss of a child not just cancer. I have also contacted Aimee's end of life specialist at CHOP to let them know what I am doing and to see if they would mention me to patients families that live in my area. It is my hopes that these families will soon learn that they are not alone. I also hope that from my own and others past experiences we can support each other. My older two children have even offered to join in as adding a support group for siblings. Even though my children are much older then most brother and sisters going through this they both fully understand what it is like to watch your sister suffer and then pass from this dreaded disease.
I have also scheduled Aimee's walk for September 13th 2009. More on that later. So even though some may feel that I have been channelling my energy for the negative I have not. I have been sending many letters to Government officials to help in the cause of bringing awareness and funding. Which, I am happy to say I have many officials that are coming to support Aimee's dream in September. Even though I have said many times that this is not about Aimee or Aimee's foundation someone needs to host the event so that will be Aimee. I have also invited many families to come and tell their stories, which I am also happy to say there will be many. So as you can see even though Aimee's Army is hosting the event it is not nor will it be all about Aimee but about all the children, past present and future.
My recent anger, and past anger towards others has mainly been due to the fact that some have lost focus on the main reason these support groups have been started in the first place. And even though we all have different opinions as to what treatment is best, or what support is best they are still just opinions none should be greater then the other. I have never nor will I ever push Aimee's dream or her foundation on to others. If you want to be there and support her cause Thank You, if you don't then I feel that is your choice and who am I to try and force you to change. May God bless you all and let us work together being soldiers to win this fight with DIPG and all childhood cancer.
Annette
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